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Category Archives: Brave Mom

A Time to Embrace, A Time to Refrain

10 / 29 / 1810 / 29 / 18

For me, the onset of motherhood came suddenly.
…
It was a Friday – Valentine’s Day?, actually. I sent a letter home to each of my students’ families, letting them know that the long-term sub would be stepping in after Spring Break. I started to visualize nesting, putting a nursery together, baby showers?. I took pictures of my students as they played holiday-themed party games, and chatted with parents at the Valentine’s Day celebration.  I left school that day feeling excited, optimistic, orderly✔️.
…
What I never could have expected was that I wouldn’t be returning.

***
Earlier that week, I had requested a meeting with my school principal to discuss maternity leave.

“The High-Risk doctor thinks I should stop working around 30 weeks,” I said nervously?, “but Spring Break falls around Week 32, so I’ll start my maternity leave then.” Our principal was an approachable, thoughtful, and family-first kind of guy, but my Type A mindset had me stuck in a place of not wanting to be an inconvenience to anyone – even in pregnancy.
…
His response was one that I will never forget:
“No problem,” he said, “And if you need to be done earlier than that, that’s ok too. The long-term sub will be here to step in whenever she’s needed.”

“Thank you,” I sighed, visibly relieved. “Please know that I’ll make sure sub plans are organized, and…”
“…And if they’re not,” he cut in, “then she’ll figure it out.”

Wait…really? I was blown away?.
It was exactly what I needed to hear – I just didn’t know it yet?.

***
The placental abruption happened one week later.  

There were never any sub plans.
***

To become a parent is to explore new depths of vulnerability. The first lesson I learned as a mom was perhaps the toughest:

I am not in control?.

I may keep the ship moving and direct the sails, but someone else is at the helm⚓️. To have a child is to give he or she over to God’s plan for their life, and that sure can be tough??.
…
As moms, we do everything in our power to ensure our children know, and feel, our love. We safeguard them to the best of our abilities – physically, mentally, and emotionally?? – but when it comes to really protecting them, only God can do that.
…
My husband and I were thrust into a parenting world of fragile procedures and dire statistics- one that gave us little choice but to pray, trust, and wait for what was coming next??. It was discouraging, disheartening, and, at times, infuriating?.

It was exactly what we needed?.  
…
You see, the problem with control is that it inherently lacks trust. By holding tight to the reins, we can’t leave room for a wiser, more experienced handler?.
…
Our experience taught us that relying on Him isn’t always easy, but it is always worth it. This truth presents itself in so many ways – big and small – when it comes to parenting. We trust Him with the physical well-being of our children, day in and day out, and as they get older we pray that He’ll help guide their hearts while they forge a path toward independence??. We provide a foundation to the best of our abilities, then we do our best to direct them down the path that He intends ➡️ – in much the same way He guides us, His children.

***
Had my orderly little rug not been ripped right out from under me 3 ½ years ago, I don’t know that I would have ever truly understood the freedom of “letting Go, and letting God.” That’s not to say it isn’t a conscious decision we have to make as parents – over, and over, and over again – especially when the path He’s chosen for our children isn’t the one we would have chosen for them ourselves, when it’s painful, or uncertain?.
.
When Owen was 3 months old, his brain bleeds required permanent intervention to keep the cerebral spinal fluid flowing?. His Neurosurgeon– the head of the entire department at Cincinnati Children’s Hospital – performed a typical VP shunt insertion; but what is usually a 3-4 hour procedure, turned into a 9 hour surgery⏱?.  
…
They tried, over and over again, to insert an additional catheter into our little guy’s 4th ventricle at the base of his cerebellum – the greatest source of his cerebral swelling – but to no avail. Eventually, they called it, and decided the only option would be to try again when he was older. At the time, we were frustrated to hear part of the procedure had been unsuccessful, and disappointed at the prospect of another surgery down the road?.  
…
Fast forward three years, and the Neurosurgery team felt the time was right. We scheduled a shunt revision surgery, and the 4th ventricle catheter was successfully inserted – no issue??.
…
Four days later, the doctors were stumped?. Owen’s shunt system appeared to be shutting down. He was rushed back into surgery to address shunt malfunction?. When the Neurosurgeon emerged hours later, he explained that Owen’s situation was one he had never seen before, and truly couldn’t explain. They were required to rework the entire shunt system in a totally new way, and if it wasn’t successful, we would be looking at months in the hospital while they devised a new plan?.
…
But it worked – I’m not sure who was more pleasantly surprised.???
We went home three days later.
…
Ironically, enough, we did end up back at the hospital?. A risk with any major surgery is infection, and Owen developed a pretty significant one: staph?. The entire shunt system was removed, replaced, and externalized outside of his body. We spent a month in the hospital while his body was slowly flushed of the toxins?; the shunt system was reestablished.
…
Looking back, I am overwhelmed by the suffering my baby had to endure?, but I’m also blown away by God’s timing, and His evident plan??.
…
Had the 4th ventricle insertion been successful when Owen was only 3 months old, his little body could have never endured all that it did at age 3. God’s been with us every step of the way??. He’s answered our prayers, though not always in the way we might have anticipated. We’ve had to trust, and trust, and then trust some more??.
…

I’ve spent the last three years being my son’s advocate, his cheerleader, and his voice??. I’ve been convinced that God gave me more than I could handle on more than one occasion – after all, I’m Mom to two boys?‍❤️‍?, not just one. But He continues to provide, and He continues to teach me how to let go.
…
This year the boys started preschool. Owen has a 1:1 aide, and a whole host of people on his school team who love my little guy as much as I do. He’s grown in every sense of the word.
…
At our most recent therapy session, I had both boys with me. Owen was beside himself?, upset at the prospect of hard work that his physical therapist was dangling before him. Meanwhile, his brother had decided that listening to directions was optional that day?‍♀️.
We were a hot mess?‍♀️.
I left that morning with a whole host of apologies, and a fresh dose of humility?.
…
We’re not meant to have all the control, Mamas.

We’re just meant to do the best we can in the moment, and then leave the rest up to Him. I’m learning to trust that – which might just be the greatest way I can show my love and faithfulness to a God who loves me, His child, as much as I love mine?.
…
There’s beauty in embracing everything motherhood has to offer, but I hope you find that the letting go can be pretty magical too.


? Jen

 

Soaking In the Truth

Scripture to encourage you:

  • “There is a time for everything, and a season for every activity under heaven: A time to embrace, and a time to refrain” (Ecclesiastes 3:1,5b).
  • “Do not be anxious about anything, but in everything, by prayers and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus” (Philippians 4:6-7).
  • “Ask and it will be given to you, seek and you will find; knock and the door will be opened to you” (Matthew 7: 7).
  • “Surely, as I have planned, so it will be, and as I have purposed, so it will stand” (Isaiah 14:24).
  • “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not harm you, plans to give you hope and a future” (Jeremiah 29:11).

Music to inspire you:

  • Find Your Wings, by Mark Harris
  • Cinderella, by Steven Curtis Chapman
  • I Am, by Nichole Nordeman

Readings and Resources to come alongside of you:

  • Podcast- “For the Love,“ with Jen Hatmaker:
    For the Love of Parenting – Episode 02
    Parenting Through All Stages: When to Hold On & When to Let Go, with Dr. Jim Burns
  • Article-
    Entrusting Your Children to the God of the Impossible

Related posts on Texting the Truth:

  • Good Enough
  • In Changing Phases: A Time to Mourn and a Time to Dance
  • Mom Win Wednesday: Kristi Krawec

Living Out the Truth

Ideas to try:

  • Start small. The balance between holding on and letting go can be a very fine line. Try to pick your battles, and take advantage of “teachable moments.” Let your children learn and experience, while also knowing that you’re there to guide them.
  • Embrace a family motto. We’ve been giving it a try recently, and I’ve found personal comfort in knowing that my kids have an easy reminder of what’s most important to “carry” with them wherever they go. In our family it’s, “Do your best, and give God the rest.”
  • Try a daily devotional with your kids, or a collection of Bible stories to share at bedtime. Check out some of our favorites in the Treasured Product lists below.

Treasured products we love:

  • Music for Kids
  • DVDs for Children
  • Elementary/Tween Books
  • Parenting Books
  • Parenting Resources

{These suggestions are ideas from novice moms. Sometimes our life situations need more.  In that case, seeking out professional help is the right call.}

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How to Help Your Child Get to Know the Special Needs Student in Their Classroom

8 / 27 / 188 / 28 / 18

Maybe they’ve just started, or maybe they’re gearing up to begin- either way, the back-to-school season is officially upon us?.

I’ve been on both sides of the desk now – as first a teacher, and now the parent – and when a sweet boy pointed to my son this summer and asked me very genuinely why he couldn’t walk, what surprised me most was that I was completely and utterly unprepared to answer.

What’s the right way to explain something like that to a little one? What’s the “appropriate” response??‍♀️

And here I was, sitting in the most important role of all – Mom!

In relaying that story to other mom friends, it’s consistently apparent that we all want the same thing – to plant seeds of inclusion and love in the hearts of our children??…but we could all use a little direction in doing so.

While listening to a podcast by “Risen Motherhood,” I was recently reminded that not talking about all of the ways God makes us different can also have an unintentional, opposite effect, whereby we inadvertently teach our children that differences are not something we talk about ?. It’s completely natural for our children to be curious about the discrepancies they see in the world around them ?. All they want is to understand, and it’s our job as parents to help them on that journey??.

So… as Mom now to two young boys myself, one typical and one with significantly disabling special needs, here’s what I want you to know:

1.)  I want your child to ask questions. Whether privately to Mom and Dad, or waiting in line at the grocery store for all to hear?? (because isn’t that how it always happens?‍), we want you to have those conversations. We want you to understand the heart of the little boy who sits in the wheelchair. Because, our little guy? He’s sweet, silly, and a serious fighter. ?

It’s easy for all of the qualities that make him so very *special* to be overshadowed by the soft helmet that he sometimes wears, the sensory manipulatives he’s chewing, the bottle he still drinks at almost 4–years-old, the sky-blue glasses that frame his face, the braces supporting his little legs, or the wheelchair that sits beneath him.

It’s ok if your child wants to stare ? as they take it all in. It can be a lot for a little mind to process!? Rest assured, we will not be offended. In fact, quite the opposite. In this politically correct society, I understand wholeheartedly how the fear of saying, or doing, something offensive so often leads us to refrain from engagement altogether. But everyone has a story, and we’d love to share a little more of ours with you.

2.)  Individuals with special needs are not to be ignored or avoided, no matter how “out of it” they may appear to be. That being said, we understand that engagement can sometimes be tricky – especially if the student in your child’s classroom is nonverbal, as my son is. The most important thing I can say here, is that even when an individual is not able to respond much conversationally they might still be able to understand a great deal. Encourage your child to talk to a new friend/classmate with the assumption that he or she understands everything. Whether or not they respond? That may vary – but they will appreciate it, and they just might surprise you.

Whenever we drive in the car?, I make a point of telling each of my boys that I love them. As I get to O, his twin brother emphatically replies, each and every time ?, “He’s not saying it back, Mom!” to which my response is always the same: “That’s ok! I know he’s thinking it.” This is usually met with a resounding, happy “Aaaaahhhhh!” from my little O in the back seat– and that’s response enough for me.

3.)  If there is a student in your child’s classroom with special needs who is able to verbalize without difficulty, encourage your child to engage in friendly conversation with them as they would any other friend. A child with physical disabilities may be feeling self-conscious about their differences?, particularly at the beginning of a new school year. A friendly “Hello” and a smile? might be all that’s needed to break the ice, and help everyone feel more comfortable.

4.)  Encourage your child to ask the teacher how to best relate to their new peer. They might have some tangible advice to offer. For example, my son’s visual impairment only allows him to see 2-4 feet in front of him– something that you would never know just by looking at him.

What are some of his/her interests? O’s twin brother knows that peek-a-boo is one of his very favorite games, so periodically he’ll pick up a blanket so that they can have fun together. Do I expect him to constantly include O in everything he’s doing? Certainly not – they’re two very different little people. But does my heart completely spill over ? when they are able to find those moments of common ground? Absolutely.

5.)  If your child develops a friendship with a new classmate, who also happens to have special needs, don’t shy away from the idea of a play date. Reach out to the child’s parents?. Ask for suggestions as to what might work best for everyone. They will certainly appreciate your thoughtfulness!

6.)  Discuss behaviors that might be troublesome to your child. Head hitting, biting, hair pulling, and yelling out – these are all things that can be very difficult for little ones to process, particularly in the classroom environment. Encourage your child to ask the teacher why a classmate might exhibit such behaviors, and he/she may be able to help them feel more at ease.

For example, my son’s inability to verbalize wants and needs can be very frustrating for him – particularly if we do not understand?. Help your child imagine how that might feel. Sometimes O will bite his arm or yell out when he’s feeling overwhelmed, or excited. Can your child relate to those feelings?

Does the student in your child’s classroom have an adult aide with them during the school day? Why do they think that might be? What can your child do them self, that this new friend might need some extra help accomplishing?

Rather than instilling a sense of sympathy in our children for classmates with special needs, we want to encourage a sense of greater understanding and empathy for another human being – one who, deep down, is a kid just like them.

7.)  It’s a process. Give your child (and yourself!) lots of grace. We don’t want our children to feel it’s their obligation to befriend every individual with special needs who crosses their path. We do want to imprint their little hearts with the notion that God’s fingerprints are on everyone they encounter. Day by day, they can learn a little more about new friends who might initially be harder to understand. Day by day, they’ll learn that differences aren’t so much scary, as they are a reminder that God’s plan for each of us is different.

Last week, my son’s teacher sent home a fabulous list, entitled, “Questions to ask Your Child Beyond ‘How Was Your Day?’” I had admired similar lists when I’d seen them before, and this particular one was adorned with inquiries like, “What made you happy today?” and “What was most challenging?”

So, Mama – here’s my request. When you’re questioning your child about their school day, can I ask you to include just one more? ??

Have you asked them about the special needs student(s) in their classroom??

From one Mama heart to another?, trust me when I say that my child – and yours – will thank you for it.

And this Mama? Well, she certainly thanks you, too.
?Jen

{Please Note: This advice represents the opinion of only one special needs parent, who is still humbly trying to figure things out as she goes. While reference is made to a few of my son’s specific disabilities, it is my hope that all Mamas of special children – of all forms and degrees of disability – might find themselves represented here. }

Soaking in the Truth

Scripture to encourage you:

  • “I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well” (Psalm 139:14).
  • “His disciples asked him, ‘Rabbi, who sinned, this man or his parents, that he was born blind? ‘Neither this man nor his parents sinned’, said Jesus, ‘but this happened so that the works of God may be displayed in him’” (John 9: 2-3).
  • “Before I formed you in the womb, I knew you. Before you were born, I sanctified you (Jeremiah 1:5).

Music to inspire you:

  • Different, by Micah Tyler  
  • Fingerprints of God, but Steven Curtis Chapman 
  • You Raise Me Up, by Josh Groban (BYU Vocal Point A Cappella Cover) 

Readings and Resources to come alongside of you:

  • “Risen Motherhood” Podcast – Transcript, Episode 89: Trillia Newbell-Helping Our Kids Celebrate God’s Beautifully Diverse Design 
  • How to Be Friends with a Special Needs Mom: 10 Ways to Encourage and Support 
  • Children’s Books About Empathy

Related Posts on Texting The Truth:

  • What’s Your Challenge?
  • What’s in Your Backpack?
  • Strong Kids

Living Out the Truth

Ideas to try:

  • Here’s an idea that a few of my former colleagues used, and I loved: Read the book Only One You, by Linda Kranz. Go on a hike or a scavenger hunt in the backyard, and find a rock to represent each member of the family. This could also be a fun sleepover or play date activity! Have each child or family member paint their rock with things that they love. Display them in your garden, a vase, or in the classroom as a visual reminder that there is incredible beauty in individuality. 
  • Check out some of these great book suggestions with your kids:  1.) Books about Kids with Special Needs    2.)  Books about Being Different

 

Treasured Products we love:

  • Everybody, Always, by Bob Goff
  • Gigi, God’s Little Princess, by Sheila Walsh
  • Hide ‘Em in Your Heart, by Steve Green
  • The Care and Keeping of YOU, by Valorie Schaefer

{These suggestions are ideas from novice moms. Sometimes our life situations need more.

In that case, seeking out professional help is the right call.}

 

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We don’t claim to have motherhood figured out. Actually quite the opposite. We’re a group of women who first and foremost love the Lord and want to honor Him with our lives and talents. And we decided that what better way for us to sort out this beautiful and messy thing called motherhood but to process it together in text messages? Our prayer is that as we share our real-life stories and honest experiences, every mom who visits our blog will receive tangible truth and experience real grace.

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